Tuesday, August 21, 2007

Joshua walks!

Joshua has been really working on his walking skills, with the help of his occupational therapist. Well, today he finally figured out that he can walk on his own. He walked across the room to me several times and was so thrilled. He is still not convinced that he wants to do this all the time, but that will come soon.

We are so excited by his progress. Today we met his new occupational therapist, Bridget (his previous O.T. recently got another job). He warmed up to her very quickly and was quite responsive to her encouragement. I'm not sure how she did it, but she had him walking on his own before she left.

So, we enter a new phase of parenthood. We better finish all that childproofing we've been procrastinating!

Doctor visits this week

Last week Joshua had his first appointment with the gastroenterologist, Dr. Mascarenhas. It was mostly an introductory meeting, with more follow up to come. She did eliminate several possible issues from the list, and ordered some more blood work and tests.

This week we met with the Feeding Team at CHOP (Children's Hospital of Philadelphia) to evaluate what is happening with his eating. The evaluation included a developmental pediatrician, a nutritionist, an occupational therapist, a speech therapist and a psychologist. It was a long day, but Joshua was a trooper.

They gave us a short report at the end of the appointment, with their findings and recommendations -- the full report will come in the six weeks. They confirmed the categorization of "Failure to Thrive", and observed his developmental delays. On the positive side, they eliminated any sensory processing issues as a possible cause of problems, and confirmed that his oral motor and swallowing skills were functional for feeding.

Their recommendations were fairly straight forward. Joshua has started taking daily vitamins and will begin visiting our pediatrician every two to three weeks to monitor his weight. They also suggested a few changes in our feeding techniques to help with intake volume. We will following up with them in six to eight weeks, after we complete the recommended lab work.

Thank you for your prayers. It was wonderful to receive input from so many different disciplines. And they are really working well with our G.I. doctor. We very are encouraged by this team of support with which we have been provided.

Monday, August 20, 2007

Welcome, Baby Sammy!

Welcome to our brand new nephew, Samuel Andrew!
He was born to Christy's sister Rebecca and her husband Andy on July 18, at 8 pounds, 4 ounces and 21 inches long.

Thursday, August 9, 2007

Our Big Announcement

We are having a baby!!!

Our new baby is due on January 15, 2008. We are currently 17 weeks along, so we will hopefully find out the gender in early September at our next ultrasound.

It has been a little crazy with all the stuff Joshua has been going through. And I have been VERY nauseous for months now. But we are very excited to add another little member to our family.

Tuesday, August 7, 2007

Occupational Therapy

Laurie, an Occupational Therapist at Children's Specialized Hospital here in New Jersey, has been visiting Joshua once a week now for about a month. Her primary focus so far has been his gross motor skills -- strengthening his upper body, so he can learn to walk.

Joshua loves playing with her. She makes him work hard, but he gets so excited by all the things he is able to do. He now knows that he can stand up without having to hold on to anything. Though he is not walking on his own yet, he is finally strong enough to walk holding onto only one hand instead of both. We are very excited about his progress.

Donna, another therapist from Early Intervention, also visits once a week. She is working on developmental issues with Joshua -- fine motor skills, communication and sensory issues. Joshua has already learned several words in sign language; this has greatly reduced his frustration (and mine). Now he can indicate to us when he wants more to eat, or is all done and he knows how to ask for something when he wants it.

Next week Joshua has an appointment with a Pediatric Gastroenterologist. They will be checking for any medical reason for his lack of weight gain. After that, we will be meeting with a feeding evaluation team to determine what we can do to help his eating issues. I am very hopeful that this will make meals less stressful on everyone.

We are very excited about the progress Joshua has shown in this short time and are enjoying his growing confidence and communication skills.

Popular Posts